Today Jason and I went to the diabetes clinic today to learn how to manage his newly diagnosed type 1 diabetes. It was very informative and while this new experience could be a challenge, it's nice to know we have a lot of support through family and doctors. We got a lot of good books and pamphlets, and here was one I thought was very interesting:
Diabetes Etiquette - for people who don't have diabetes
1. Don't offer unsolicited advice about my eating or other aspects of diabetes. You may mean well, but giving advice about someones personal habits, especially when it's not requested, isn't very nice. Besides, many of the popularly held beliefs about diabetes ("you should just stop eating sugar") are out of date or just plain wrong.
2. Do realize and appreciate that diabetes is hard work. Diabetes management is a full-time job that I didn't apply for, didn't want and can't quit. It involves thinking about what, when and how much I ea, while also factoring in exercise, medication, stress, blood sugar monitoring, and so much more - each and every day.
3. Don't tell me horror stories bout your grandmother or other people with diabetes you have heard about. Diabetes is scary enough, and stories like these are not reassuring! Besides, we no know that with good management, odds are good you can live a long, healthy and happy life with diabetes.
4. Do offer to join me in making healthy lifestyle changes. Not having to be alone with efforts to change, like starting an exercise program, is one of the most powerful ways that you can be helpful. After all, healthy lifestyle changes can benefit everyone!
5. Don't look so horrified when I check my blood sugars or give myself an injection. It is not a lot of fun for me either. Checking blood sugars and taking medications are things I must do to manage diabetes well. If I have to hide while I do so, it makes it much harder for me.
6. Do ask how you might be helpful. If you want to be supportive, there may be lots of little things I would probably appreciate your help with. However, what I really need may be very different than what you think I need, so please ask first.
7. Don't offer thoughtless reassurances. When you first learn about my diabetes, you may want to reassure me by saying things like, "Hey, it could be worse; you could have cancer!" This won't make me feel better. And the implicit message seems to be that diabetes is no big deal. However, diabetes (like cancer) is a big deal.
8. Do be supportive of my efforts for self-care. Help me set up an environment for success by supporting healthy food choices. Please honor my decision to decline a particular food, even when you really want me to try it. You are most helpful when you are not being a source of unnecessary temptation.
9. Don't peek at or comment on my blood glucose numbers without asking me first. These numbers are private unless I choose to share them. It is normal to have numbers that are sometimes too low or too high. Your unsolicited comments about these numbers can add to the disappointment, frustration and anger I already feel.
10. Do offer your love and encouragement. As I work hard to manage diabetes successfully, sometimes just knowing that you care can be very helpful and motivating.
5 comments:
My son was diagnosed at 22 months with Type 1. He's now 7. So I totally know how you are feeling right now. Overwhelmed! It's alot of work, you'll learn ALOT. But it's great that you'll be learning together. We just got an insulin pump for our son and we love it and highly recommend it. You'll become an expert at counting carbs. But just take it one day and a time and don't beat yourself up if his sugars aren't "perfect". Keep us posted. You can comment on my blog if you have any questions. There are great resources these days for Diabetics and those who love them. Oh, and #3 on your list is SO TRUE. I just smile and then I want to punch them in the face. But I don't. :-)
Perfect thing to post. I have that paper hanging on our wall right by our computer. We'll have to get together and do a diabetes walk this year - and now that there are 2 diabetics in the family we can have a huge group and raise a lot of money for type 1 diabetes research. Woo hoo!
My roommate for two years has diabetes and I quickly got used to her pump she had attached to her all the time or letting me know she needed a snack to get things balanced. She was awesome so I have no doubt you guys will be any different.
It is tough to get some unexpected medical information, like with my heart this last semester. But at least you know it's manageable and you can still live a great and regular life.
PS: Sorry if any of those comments violated the guidelines in your post, I didn't mean to!
We sure love you and enjoyed spending time with you this past week-end. Let me know if there is anything I can do to help.
Wow, i haven't been blog hopping in a while so I just barely got the chance to check in with you. We hadn't heard about Jason being diagnosed with diabetes so it was a surprise to read this post. Is type one diabetes hereditary or was it just a rarity that it popped up twice in the same family?
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